Ara Parseghian’ Legacy

Ara Parseghian passed away on August 2, 2017 at the age of 94.  He not only had a tremendous impact on the Notre Dame community, but on the NPC community as well.  The dedication and perseverance of Ara and his family is why a treatment and cure for NPC disease is in reach. Click on this LINK to learn more … Read More

Road To Discovery Bike Ride–May 16 & 17

Students from ESTEEM (Engineering, Science, & Technology Entrepreneurship Excellence Master’s Program) at Notre Dame are organizing the 2017 Road to Discovery event: a two-day bike ride on May 16 and 17, 2017, that will start in Notre Dame, Ind., head to Chicago, Ill., and circle back to Notre Dame. The goal of the annual Road to Discovery bike rides are to raise funds and awareness for the Ara … Read More

2017 Infiniti Coaches Charity Challenge–Fundraiser for NPC Research

The 2017 Infiniti Coaches Charity Challenge tipped off on January 2nd, 2017. Coach Matt Painter of Purdue will be representing the Smith Family BReaK Thru Fund, which supports the APMRF research efforts to find a cure for Niemann-Pick Type C (NPC) Disease. Yes!  We not only collaborate with other Universities on our NPC research efforts, but also with our fundraising efforts. How does it … Read More

IRFU And University Of Notre Dame Announce Rugby Partnership

The Irish Rugby Football Union and University of Notre Dame have agreed a ground-breaking partnership to promote and develop rugby at Notre Dame and consequently across the United States.  You can read more at http://www.irishrugby.ie/news/38508.php#.WCsNprIrLIV The Notre Dame Rugby team has been a longstanding supporter of APMRF by hosting the Parseghian Cup, an annual Rugby match between Notre Dame and the … Read More

Greg Crawford president of Miami University (Ohio)

Thank you and congratulations to Greg and Renate Crawford. Greg has begun his role as the 22nd President of Miami University (Ohio), which is the Alma Mater of Coach Parseghian. Greg was a key supporter of the APMRF, and dedicated his summers to the Road To Discovery Bike Ride where he cycled across the country 5 times to raise money … Read More

2016 Parseghian Classic

The 5th Annual Parseghian Classic was held at Pebble Beach Resorts in California. With over 60 golfers and 120 total guests, plus special performances by singer/songwriter Isabela Nanni and comedian Henry Cho, it was truly one of the most fun and meaningful events of the year and also raised a lot of money for NPC research efforts. Thank you to … Read More

2016 Parseghian Conference

NPC scientists and families were delighted to return to Tucson in June for the annual Ara Parseghian Medical Research Foundation Annual meeting.  This past year has brought several major breakthroughs in our understanding of the function of NPC1 protein, and three laboratories presented these discoveries as part of the conference program.  Scientists and families were also briefed on the latest … Read More